CIU is a fairly rare disorder that means you break out in hives and swelling for no discernible reason. About half of CIU patients will not respond to antihistamines.
And this is what it looks like…
And when the hives fade, the bruising and discoloration…
This is a strange and uncomfortable and disruptive issue. I’ve woken up with both eyes swollen shut. I carry epi pens because the tongue can swell up, and that’s potentially life threatening.
The only medication that controls this -besides Prednisone, which is not a good long term option, is not affordable. I’m on financial assistance…just to be able to get a med to improve my quality of life, and ensure that my tongue and throat don’t swell up.
Now epi pen prices are higher.
CIU patients are impacted by pharmaceutical greed.
It’s not right.